epilepsy

Shut.Up.

He is wiggling in his seat and not the good kind of wiggle   It’s the kind that let’s me know all hell is about to break loose   “It’s okay baby,” I purr as we pull out of the driveway but his wiggles turn to whines and I turn to the deep breathing I [...]

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Another Reason Why I Eat Cheese-Its at 1:00 O’clock in the Morning

Among the mystery cans and salad dressing bottles in the bedamong the in-home therapy each day after schoolthe YouTube videos on repeatthe inappropriate squeals during churchthe stims and elopement that always keep us on our toesthere is that other thing we don’t talk about quite as oftenbecause, after dosing you with what can only be described [...]

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Somewhere In the Middle

That is where I am I don’t petition the governmentOr write threatening letters to drug companies I don’t tape record IEP meetings or have a panel of attorneys at my sideI don’t demand that the school district pay for horse therapy or expect hard working teachers to perform miracles I stay awake at night, counting [...]

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125mg + 125 mg = Too Much Medication

“I can get you in on the 12th of February at 4:15 p.m.” “Wonderful. Thank you Dr. Marci. In the meantime, can we start decreasing some of the meds? It just seems like so much.” “I want to decrease the Klonopin first, but in order to do that, we have to go up on the [...]

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