He is wiggling in his seat
and not the good kind of wiggle
It’s the kind that let’s me know
all hell is about to break loose
“It’s okay baby,” I purr
as we pull out of the driveway
but his wiggles turn to whines
and I turn to the deep breathing I rely on
to keep my blood pressure down during times like these
“We’re almost there!” I enthusiastically inform him
but he answers with more whining
and begins to kick
the passenger side backseat
“Use your words, I coax him
though the several dozen approximations he has
are insufficient to express what he wants, what he needs,
and it doesn’t take a genius to figure out
that
he’s telling me to go to hell
in his own way
“Quiet mouth,” I gently request
turning to my least favorite weapon in my Parent Ed arsenal
I always have a hard time justifying
asking my non-verbal son to be silent
But his whines get stronger
louder
longer
lasting all the way to therapy
all the way to the library
all the way to Target
all the way back home
“Shut.Up.”
“Shut.Up.” I think to myself
“Shut.Up!!!!” I scream on the inside
as I park the car in the driveway
and bury my face in my hands
“Shut up.Shut up.Shut up.”
I let the awful words swirl in my head
fill up my heart
course through my veins
until they lose their meaning
and don’t sound so awful anymore
I am no longer afraid
of admitting
that there are times
in this LIFE
of autism
of epilepsy
of stupid cystic fibrosis
that I think
SHUT.UP.
or
THIS SUCKS
or
DAMMIT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Because
I AM afraid
of what would happen
(because I KNOW what would happen)
if I pretended
that everything was
a
Norman F-ing Rockwell Painting
Sometimes
a hearty
Shut.Up.
uttered in the confines
of a broken heart determined to stay sober and free
is just what
this mama
needs
I relate to this so much, but it’s just the noises and whining my 4 y/o is still non verbal. The melt down today was Epic and over something so stupid I wanted to scream but I have to keep my wits, then I go cry in my bathroom alone.
Thanks for sharing.
Oh Jo…words fail me. You are my living, breathing hero and inspiration for motherhood at its very best. You take all that life throws your way–never ever giving up…always loving your family in honest and equal carvings of discipline and love. The ensuing sculpture is incredibly beautiful.