Jo Ashline

Jo Ashline

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Tag: Bus

For the First Time (Since Ever) He Didn’t Sit Alone

Every morning I put my special needs son Andrew on the school bus buckle him in cover him in love and cross my fingers and toes that he’ll be okay while he’s away   Every morning he stares at me through the window while I wave and blow kisses and jump up and down hoping…

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Jo Ashline

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Yes I brought two children into the world blah bla Yes I brought two children into the world blah blah blah and yes I have kept them fed and clothed (with the exception of Andrew’s ongoing nudist tendencies) and have been a relatively okayish mom for the better part of 20 years and some would say that’s quite the achievement for a parent but clearly they would not personally know the thrill of keeping a plant alive (and growing!) for two years. 

I’m basically a farmer you guys.

#farmer #farmerjo #fiddleleaffig #mom #raremom #rarediseasemom ##specialneedsmom #plantmom
During warm-ups today, Andrew decided to get out o During warm-ups today, Andrew decided to get out of his wheelchair and run the bases all by himself! Such an awesome moment. Thanks to my husband @tuxhikes for capturing it! ❤️⚾️
Our Sprint4Syngap event was a success and so much Our Sprint4Syngap event was a success and so much fun thanks to our family and friends.

We also finally got to meet a fellow Syngap family in person for the first time, after nearly 4 years of friendship on Facebook!

Thank you so much to everyone who has donated to our fundraiser, we are so grateful for your support! 💙💜💚
Tomorrow is our Sprint4Syngap 5K fundraiser for @c Tomorrow is our Sprint4Syngap 5K fundraiser for @curesyngap1 . Please help us reach our goal by clicking the link in my bio and donating whatever you can. We are so grateful for your support!

Andrew was 2 years old when he was diagnosed with autism, epilepsy, global developmental delay, and so many other challenges. It took another 14 years before we discovered he has a rare genetic disorder called Syngap1. Andrew is an amazing young man and is such a source of joy and love. Our greatest wish is to give him the very best quality of life and help others with this rare disease. Despite everything he’s faced, Andrew continues to fill our home with laughter, hope, and unconditional love. He is our hero. 💙💜💚
Happy Birthday to my best friend and amazing husba Happy Birthday to my best friend and amazing husband @a__s__h__ ! You bring so much joy and love and laughter into our lives, and you wear many hats (not just the ones in these pics) including dad, husband, brother, uncle, son, and friend. You are kind to those you love, as well as total strangers, knowing that a little kindness can go a long way. You care so deeply and love so unconditionally, and we are all so lucky to have you in our lives. Thank you for being exactly who you are, because you’re exactly who we need and love.
#challengerbaseball #brothers #Syngap1 #syngap #ep #challengerbaseball #brothers #Syngap1 #syngap #epilepsy #lennoxgastautsyndrome #autism #globaldevelopmentaldelay #intellectualdisability #accommodation #accessibility #baseball #littleleauge #challengerleague
I can’t believe it’s been 20 years since you c I can’t believe it’s been 20 years since you came into the world and gave new meaning and purpose to our lives. And yet, though it seems like yesterday that I first stared into your beautiful face and felt my heart and soul forever imprint onto yours, I cannot imagine a time when you weren’t here, the days before you existed melting into blurry memories. 

And then it was YOU and everything suddenly came into focus.

Today was so awesome. A baseball game first thing this morning with your brother as your buddy, your favorite dinosaur bounce house at your favorite park, and your favorite people helping us celebrate you and the joy you bring to all of our lives. 

Happy 20th Birthday Andrew. 

You are magnificent.
And after all of this time, 
we’re still amazed 
you are ours.
Happy Birthday to my very first best friend, my be Happy Birthday to my very first best friend, my beautiful baby sister @aggielaughsoutloud!

You are such an incredible mom, wife, sister, aunt, daughter and friend. I’m so proud of you and so lucky to have you in my life (and living 4 houses down from me)! 

You are so loved and treasured and we are so excited to celebrate you!

Sto Lat Aggie!
Kocham cie!
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