Jo Ashline

Jo Ashline

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Tag: Friendships

A playdate. With his first school friend. Some things are totally worth the wait.

I’ll admit it. I was a bit nervous   Not a bad nervous A giddy nervous There’s a distinct difference, you know.   I held the paper in my hand and stared at the numbers until they blurred together into one big ink blotch bit my lip grabbed the phone and dialed   The voice…

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Jo Ashline

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We are one week away from our Sprint 4 Syngap even We are one week away from our Sprint 4 Syngap event and we need your help to reach our fundraising goal! 

Every penny raised goes directly to research, so we can find treatments and a cure for Syngap1, the rare genetic disease Andrew was diagnosed with at age 16.

To imagine he could one day be stronger, healthier, and even seizure free thanks to advances in scientific research and the efforts of family, friends, and Syngap Research Fund - SRF is the kind of HOPE we never dreamed of before becoming part of the rare disease community. 

There is no such thing as a small donation, every dollar gets us closer to what we now dare to imagine for our son and his fellow Syngapians! 

Link in comments and bio! 💜💚💙
Happy Birthday @a__s__h__ ! I love you so much and Happy Birthday @a__s__h__ ! I love you so much and hope you know just how much you mean to all of us! Sto Lat! ❤️
Happy Birthday to my beautiful baby sister, @aggie Happy Birthday to my beautiful baby sister, @aggielaughsoutloud!

I love you so much Aggie, and am so grateful you’re my original bestie, my sister, and now my neighbor! I love laughing with you and laughing at you (😂), but nothing makes me happier or more proud than watching you be an amazing mama to your beautiful babies. 

Thank you for enriching our lives with your laughter, your generosity, your talents (especially those gorgeous flower arrangements you spoil us with and the incredible meals you prepare and share). We adore you and can’t wait to celebrate you! 

Sto Lat Honey! ❤️🎂
My sweet Andrew. You had Syngap before you were ev My sweet Andrew. You had Syngap before you were even born, and it took us another 16 years to find out. After nearly two decades of searching for answers, your rare disease diagnosis came as a welcome relief, a reason for everything you have endured in your life. 

Today, on Rare Disease Day, I am grateful we finally have the missing piece of your story. You are 1 in 1164 worldwide. You are part of a growing community of Syngap patients and families, advocates and scientists, all determined to find a path towards a better quality of life. And, as the seizures have recently ramped back up and keep coming despite all the meds, I dare to pray someday even a cure. 

It does not surprise us sweet boy that you of all people would be so rare, as you have always forged your own path, defied the odds, and continue to share your one-of-a-kind soul with the world. 

We love you so much Andrew.
Our hero. 
💜💚💙
Happy Birthday to my incredible dad, who continues Happy Birthday to my incredible dad, who continues to show his love for us by showing up every single day in a million different ways. This year especially,  words elude me to describe just how amazing this man is, how selfless he is, how treasured he is and how much we look up to him. 

I won the lottery in the dad department, and I am grateful every single day that he raised me, helped to raise my children, and continues to be a source of unconditional love, support, joy, humor, and wisdom for our entire family. 

Tatusiu, you’re my hero. Thank you for your unwavering commitment to the people you love, and for choosing us every single day. I am so proud to be your daughter. 

Sto Lat.
Kocham cie. ❤️
Gorgeous flowers from @a__s__h__ for our 21st anni Gorgeous flowers from @a__s__h__ for our 21st anniversary. Thank you honey, for being my person, then, now, and forever. I love you so very much. ❤️

This romantic bouquet was made by my talented sister, @aggieathome. DM her if you’re local and need a stunning arrangement. 💐
We had to unexpectedly say goodbye to our beautifu We had to unexpectedly say goodbye to our beautiful Lola today. Still in shock. She’s been a part of the family since 2009 and I can’t believe she’s gone. I’m so thankful to my husband and Ian for being with her in her final moments. Ian was her person since he was 5 years old, they had a very special bond. Today has been so hard on him especially. 

Lola, we will miss those gorgeous eyes, those tiny paws, the way you fell asleep on cellphones and battery chargers, the way you’d get the zoomies in the hallway, your sweet nuzzles and head bonks, and just your presence in this house and in our lives. Thank you for 13 amazing years. You were the best little kitty and we are so lucky you were ours. I hope you’re with your brother Charlie again, reunited after all these years. 

Goodbye precious girl. 💔🌈
My dad organized an amazing celebration in honor o My dad organized an amazing celebration in honor of Poland’s Independence Day today. I’m so grateful for this incredible family of mine, and so proud to be Polish! ❤️🇵🇱
Happy 2nd Birthday Olivia Scout! You are a force t Happy 2nd Birthday Olivia Scout! You are a force to be reckoned with, despite being the littlest member of our family. An epicenter of joy, a beautiful soul that brings laughter to our lives and keeps us on our toes. You remind me so much of our beloved Babcia Wala, and I have no doubt you too will lead with love and courage, just like she did. You are strong, curious, so smart, and greet everyone you love with outstretched arms and that trademark giggle we all adore. Thank you for being our bright shining light, we love you so very much. 

Sto Lat beautiful Bebe
Kocham cie. ❤️
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