September 2013

“What’s Wrong with Him?” is Better Than “He Doesn’t Exist.”

  We were just wrapping up our evening and putting our leftovers into our to-go boxes when she made her way towards me, her cheeks flushed, her eyes hinting at her humiliation. “I’m so sorry,” she said. At least, that’s what I thought I heard her say. We were at a local pizza joint with [...]

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Happy Birthday to My Kid and Some Other Stuff

I’ve spent the last several hours sitting on my living room couch, pouring over photos of my children, my husband, my family and friends. My youngest son, Ian, turns 10 today, and nostalgia has filled up my heart and mind, as I struggle to accept how quickly time has passed, knowing it will continue to [...]

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Even if He Asks for the Moon….

What do you do when your non-verbal special needs child uses his speech device (in Andrew’s case an iPad mini featuring Proloquo2Go) to make a very specific request first thing in the morning? Why, you change your plans, pack your crap, and reinforce the hell out of his amazing communication via miraculous technology! Yesterday morning [...]

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Strong like Saints. Right?

We are told we are strong. That God chose us. That special kids go to special parents. We are commended, complimented, compared to saints. When society isn’t judging us in Target stores, it’s perching us upon dangerously high pedestals against our will, pedestals that prove wobbly on even the best of days. And we do [...]

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Attitude Adjustment on Aisle 17

Trust me when I tell you that what came out of my mouth wasn’t at all what I truly wanted to say to her.  But I was suspended in that fragile moment between trying to hold it together for the sake of my children and succumbing to the need to come apart at the seams, [...]

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