Dearest Superman, I have been sitting here, assessing my day, our day, and I feel it necessary to let you know that I am sorry. I am sorry for being so impatient with you today. You are almost five. You are on fire! You have more energy than you or I know what to do…
Already?
He was born with big blue eyes, a headful of dark hair. He was screaming and wet when they first placed him on my chest and I knew instantly, in those first few seconds, that my world would never be the same. I fell madly in love and cried, and stared into a face that…
Tractors, Thunderstorms, Farms, Oh My!
We departed our bustling world of Orange County on Tuesday night, taking the red eye to Cleveland, Ohio (Hello OHmommy!). We boarded an express jet and flew into Albany and picked up our comfy and clean rental car. We drove two hours south and found ourselves in Keesville, NY. We were in the middle of…
Short Version
On Monday night we took monchichi to the ER per our neurologist’s instructions. At that point he had had well over 20 seizures in about an hour or so. Within 12 hours he had over 100 seizures. They are drop seizures and staring seizures. It was horrifying to say the least. We were admitted to…